This past weekend Tanner was admitted to the Epilepsy Monitoring Unit at the Cleveland Clinic in Cleveland, Ohio. Tanner was diagnosed with epilepsy as of March of this year. After attempting four different medications and suffering an array of different seizure types and side effects, Tanner's neurologist referred us to the Cleveland Clinic to get a definitive diagnosis and (hopefully!) a better plan of action for treating his epilepsy. I would consider the trip a success! Tanner "performed" quite well and demonstrated all of his different seizure types while being hooked up to the EEG. The physicians even felt they gathered enough information to cancel one of the tests they had scheduled. This news was quite a relief for me because my little Tanner would have had to have been sedated for this specific test. All of the staff were extremely friendly and helpful and they even had a HUGE fish tank and awesome play room that Tanner could run around in. I was so pleased with how well he did.....for being three years old and extremely energetic he hardly complained about being in bed so much. I suppose it helped that he got plenty of new Disney Cars, ice cream, and all the movies a kid could ask for.
2 comments:
Prayers go a long way toward giving those we love the help they need. I am so thankful you were both able to be there to support him. I spoke with Alan today and he has described the continued difficulties Tanner has had in adjusting to his meds. My heart sure aches for the little guy. It is hard in a way to be a grand parent because we feel all of the love and pain but can't do much other than watch from a distance and pray. We do love you guys. We continue to watch and keep you in our hearts.
Poor little guy...that is so not fun to see him suffer like that I'm sure. Hopefully this will help them to figure out how best to help him in the future...my thoughts and prayers are with your family of course...
Post a Comment